#specialneedsblogger hashtag on Instagram | inst24

#specialneedsblogger hashtag on Instagram | inst24

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This afternoon I attended Harry’s school for an awards ceremony and afternoon tea. Harry didn’t win an award but I’ve never seen so many children thrilled for each other to be worthy recipients. It really was lovely and when I asked if Harry wanted to come home with me or transport he jumped up and grabbed me for a hug. His TA said “he adores you” and the feeling is completely mutual 💓💓 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

Harry stopped often during his breakfast this morning to wrap his arms around me and pull me to him. I know he loves his family but our bond is such a special one that I don’t know which of us needs the other the most 🥰🥰 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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My Mum called round tonight to see how we got on at the hospital (Harry’s having a procedure for further investigation ). From the back she mistook Harry for Oliver. When they were little I dressed them the same, dearly wanting people to know they were twins and see the similarities and not the differences. Today, I’m proud of my boys for the individuals they are but it makes my heart swell when I see the resemblance; the moments and the mannerisms that I dreamt of seeing between my boys as I carried them. It’s not the life I imagined back then but it’s still a wonderful one full of love for the boys who changed my world Cx **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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We often don’t realise the things we say regularly. Harry always asks “mummy??” And I reply “mummy’s here” but recently I’ve added a bit. I didn’t really realise how often I said it until Harry gave me this hug and said “mummy always here” to which I said “yes babe, Mummy is always here”. Oh my heart 💓 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Please stop teaching your children not to stare! 🛑 What are we teaching them when we say that? Don’t look at someone who is different then you. Don’t be curious or want to learn about something you’ve never seen before. Stay away from things that are different. 🙅🏼‍♀️🤦🏼‍♀️ Instead, let them stare. Let them ask questions, talk about it. What is it that they see? What is it that they’re curious about? What is different? What is the same? ⭐️ If it’s someone using a wheelchair, say hi. If it’s someone that looks or acts different, say hi. If it’s someone of short stature, say hi. 👋🏼 Teach your child about differences. It’s okay to be different. It’s okay to notice it & to talk about it. It’s not okay to ignore, look away, or act like a person who is different isn’t there. It’s even better to make a new friend. 💛 Let’s embrace different. Let’s talk about differences & be the change we want to see in this world. (I talked about this in my stories or check the advocate highlight 😘) 🤟🏼 #thisnewlifeofmine #jackydeeg #differentneedsmomma #lincandjackg #photobymad 📷 @photo.bymad

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Autism and puberty are a painful combination. We’ve been struggling for a while now. Harry has no understanding of the changes and hormones raging through his body. He’s unpredictable and violent at home, in his taxi and at school but there are few blogs for parents like me to find advice in because to share our experiences means we have to sacrifice some of our children’s privacy. I could tell you so much. But I don’t. And that respect for our children and the related silence means that so many parents of autistic teens feel as lost and alone as we did right at the beginning. Today Harry is not good. Not even a birthday badge and a bag of cakes for his class have made him smile. He is torn between hugging me and ferociously hitting himself and it breaks my heart. Autism can bring many gifts with it, but some days the challenges just feel so unfair for the children we have to helplessly watch struggle 😞 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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If you’re struggling with hay fever at the moment spare a thought for Harry. It’s annoying at the best of times but when your only eye feels raw and itchy and your only nostril gets completely blocked it’s a whole new level of uncomfortable 😣 My boy was awake twice in the night then up for the day from 4am so he’s shattered now. Hoping he manages to have a good day at school 😢 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind #hayfeversucks

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I promised we’d visit B&M and we’ve just been. Meet Timber the Elephant who shouts constantly in a helium style voice and has the creepy laugh of a demented toy that will kill us in our sleep. Harry loves it and it’s relentless chatter! It’s great to have gin...I mean, him back! 🙈🙄😩🤣 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Harry has come home from school in someone else’s clothes after throwing up on his own, and with his eye missing. Basically looks like he’s had the most eventful night out on the town 🙈🤣 (He isn’t poorly before anyone worries. He’d just drank too much juice in the mission to make sure he’s got enough fluid to wee. Can’t win 😩) **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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