#specialneedsblogger hashtag on Instagram | inst24

#specialneedsblogger hashtag on Instagram | inst24

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"I (@jennagines) started working with people with disabilities in college and loved it. Then I became a stay-at-home. Jackson was a perfect, beautiful, and healthy baby. Around 8 months we noticed his eyes made clicking movements. We also noticed that he wasn't sitting or rolling very much. His brother who crawled at 14 months and walked at 20 months, was sitting by 8 months. ______ After many doctor appointments, we received a diagnosis for our sweet boy. Since then we have worked with genetics doctors to find the gene associated and they can't find it. So technically our sweet boy is undiagnosed. I mourned the little boy I thought I had and the life we were going to have. I was so excited to have my boys 17 months apart. I was so excited for them to grow up together, play sports together and be best friends. I knew that would still happen, it was just going to be different. I knew Jackson would now be on his own timeline with development and that it was perfectly okay. I don't compare him to his siblings, friends, or the chart at the doctor's office. He does things when he's ready and when his body will allow." To read more stories like Jenna's, click link in bio or visit www.yoocanfind.com. #yoocandoanything #yoocan #differentneedsmomma #disabilityadvocate #disabilityawareness #disability #advocatelikeamother #disabilityawareness #specialneeds #specialneedsmom #specialneedsparenting #specialneedsfamily #specialneedsblogger #disability #disabilityadvocate #disabilityawareness #disabilitysupport #disabilityblogger #specialneedsmotherhood #differentnotless #undiagnosed #raregeneticdisorder #undiagnosedgeneticdisorder #advocatelikeamother #advocate #thisiswhyweadvocate #inclusion #specialneedskids #nothingdownaboutit #iamadaptive

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*New Blog Post* “This is hospice” If you were like me you might be wondering, “what in the world is hospice, anyway?” You know it’s end of life but what does it mean when it’s a child? While no one wishes for hospice to be a part of their everyday I’m here to tell you it’s not all bad. Oh, it still sucks, but I’m slowly accepting it as the next inchstone on our journey. Link in bio. . . . #inchstones #inchstonesbykc #adelaideybug #adelaidesarmy #advocatelikeamother #thisishospice #hospice #epilepsywarrior #mastcellactivationsyndrome #undiagnosed #familyblogger #specialneedsblogger #momblogger #mamablogger #momblog #mommyblog #caregiver #caregiversupport #specialneeds #specialneedsmom #specialneedskids

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After a bit of a tricky Monday I’ve come home to my boys and a note in Harry’s planner that said he’d been telling his teaching assistant that “mummy’s always here” Thank you my boy 🥰 Just what I needed. Story of your life xx **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Another glowing entry in Harry’s home school diary about his manners! It’s something I’ve always instilled in both of my boys. Today I’ve cuddled him and told him how proud I am of him. Did he respond? Not really. Does he understand the concept of pride? Not at all. Does that stop me? Never. I will tell him until my last breath how much he means to me because I believe that he understands the language of unconditional love even if he can’t process all of the words. I KNOW that he knows. The twinkle in his eye tells me (even the false one 😉🥰) **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Harry’s TA: Harry has been asking for Oliver today! Me: oh? He doesn’t usually do that does he? What was he saying? TA: home and den oyiber back Me: 😭😍😭😍😭😍 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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If you’re struggling with hay fever at the moment spare a thought for Harry. It’s annoying at the best of times but when your only eye feels raw and itchy and your only nostril gets completely blocked it’s a whole new level of uncomfortable 😣 My boy was awake twice in the night then up for the day from 4am so he’s shattered now. Hoping he manages to have a good day at school 😢 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind #hayfeversucks

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This afternoon I attended Harry’s school for an awards ceremony and afternoon tea. Harry didn’t win an award but I’ve never seen so many children thrilled for each other to be worthy recipients. It really was lovely and when I asked if Harry wanted to come home with me or transport he jumped up and grabbed me for a hug. His TA said “he adores you” and the feeling is completely mutual 💓💓 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Please stop teaching your children not to stare! 🛑 What are we teaching them when we say that? Don’t look at someone who is different then you. Don’t be curious or want to learn about something you’ve never seen before. Stay away from things that are different. 🙅🏼‍♀️🤦🏼‍♀️ Instead, let them stare. Let them ask questions, talk about it. What is it that they see? What is it that they’re curious about? What is different? What is the same? ⭐️ If it’s someone using a wheelchair, say hi. If it’s someone that looks or acts different, say hi. If it’s someone of short stature, say hi. 👋🏼 Teach your child about differences. It’s okay to be different. It’s okay to notice it & to talk about it. It’s not okay to ignore, look away, or act like a person who is different isn’t there. It’s even better to make a new friend. 💛 Let’s embrace different. Let’s talk about differences & be the change we want to see in this world. (I talked about this in my stories or check the advocate highlight 😘) 🤟🏼 #thisnewlifeofmine #jackydeeg #differentneedsmomma #lincandjackg #photobymad 📷 @photo.bymad

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We often don’t realise the things we say regularly. Harry always asks “mummy??” And I reply “mummy’s here” but recently I’ve added a bit. I didn’t really realise how often I said it until Harry gave me this hug and said “mummy always here” to which I said “yes babe, Mummy is always here”. Oh my heart 💓 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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