#diffability hashtag on Instagram | inst24

#diffability hashtag on Instagram | inst24

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Harry’s TA: Harry has been asking for Oliver today! Me: oh? He doesn’t usually do that does he? What was he saying? TA: home and den oyiber back Me: 😭😍😭😍😭😍 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Autism and puberty are a painful combination. We’ve been struggling for a while now. Harry has no understanding of the changes and hormones raging through his body. He’s unpredictable and violent at home, in his taxi and at school but there are few blogs for parents like me to find advice in because to share our experiences means we have to sacrifice some of our children’s privacy. I could tell you so much. But I don’t. And that respect for our children and the related silence means that so many parents of autistic teens feel as lost and alone as we did right at the beginning. Today Harry is not good. Not even a birthday badge and a bag of cakes for his class have made him smile. He is torn between hugging me and ferociously hitting himself and it breaks my heart. Autism can bring many gifts with it, but some days the challenges just feel so unfair for the children we have to helplessly watch struggle 😞 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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My Mum called round tonight to see how we got on at the hospital (Harry’s having a procedure for further investigation ). From the back she mistook Harry for Oliver. When they were little I dressed them the same, dearly wanting people to know they were twins and see the similarities and not the differences. Today, I’m proud of my boys for the individuals they are but it makes my heart swell when I see the resemblance; the moments and the mannerisms that I dreamt of seeing between my boys as I carried them. It’s not the life I imagined back then but it’s still a wonderful one full of love for the boys who changed my world Cx **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Happy 14th birthday to my boys, my world 🌍Both boys had a fabulous day of treats yesterday and love their gifts & cards this morning. I’m dropping them off with their Dad to continue celebrating later this morning and then I’m having an hour sleep seeing as though Harry was up from 3am 🤪🤣 #HappyBirthdayBoys **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Harry has come home from school in someone else’s clothes after throwing up on his own, and with his eye missing. Basically looks like he’s had the most eventful night out on the town 🙈🤣 (He isn’t poorly before anyone worries. He’d just drank too much juice in the mission to make sure he’s got enough fluid to wee. Can’t win 😩) **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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Eating 🍩 with my #luckyfingers while writing my numbers😉 Can’t wait to go back to school on Tuesday 💃🏻💃🏻 #unlimitedtiaraoluwa #iamunlimited #nolimits #ihavealimbdifferencewhatsyoursuperpower #iamlimbable #limbdifferenceawareness #againstallodds #iamunstoppable #diffability #diaryoftiaraoluwa™

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If you’re struggling with hay fever at the moment spare a thought for Harry. It’s annoying at the best of times but when your only eye feels raw and itchy and your only nostril gets completely blocked it’s a whole new level of uncomfortable 😣 My boy was awake twice in the night then up for the day from 4am so he’s shattered now. Hoping he manages to have a good day at school 😢 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind #hayfeversucks

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This afternoon I attended Harry’s school for an awards ceremony and afternoon tea. Harry didn’t win an award but I’ve never seen so many children thrilled for each other to be worthy recipients. It really was lovely and when I asked if Harry wanted to come home with me or transport he jumped up and grabbed me for a hug. His TA said “he adores you” and the feeling is completely mutual 💓💓 **image not to be reposted without permission** - - - - #ouralteredlife #specialneeds #specialneedschild #specialneedsparent #senblog #specialneedsjourney #disability #disabilityawareness #goldenharsyndrome #autismawareness #writing #ourstory #mysunshineboy #ilovemyboy #disfigurement #mummyblogger #blogging #specialneedsblogger #diffability #craniofacial #autismlife #autismfamily #faceequality #visibledifference #differentisbeautiful #unexpectedlife #choosekind

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